In the UK, it is estimated 100,000 people have MS. The society said it was the most common disabling neurological condition affecting young adults. Currently, there is no cure for MS, the cause is uncertain, and there are few effective treatments.

The project has been launched to mark the start of MS Week. It is hoped the data, which will remain anonymous, will ultimately map every person with MS in the UK to develop an accurate picture of the impact of the condition.