
Ask HN: Outreach for Covid-19 longitudinal study proposal? - william-at-rain
I&#x27;m failing at finding development help for a COVID-19 study initiative. I could use your ideas and critiques.<p><a href="https:&#x2F;&#x2F;gist.github.com&#x2F;williamflynt&#x2F;a1595665b8bf4e30a2a493f5aea358e6" rel="nofollow">https:&#x2F;&#x2F;gist.github.com&#x2F;williamflynt&#x2F;a1595665b8bf4e30a2a493f...</a><p>BACKGROUND:<p>A small nonprofit called RAIN in Tacoma just bought and set up blood gathering and testing equipment, and they have an antigen test for SARS-CoV-2 ready to go. Sample collection starts next week, with an eye to scaling to many thousands in the Tacoma area. PhDs in immunology, microbiology, and virology are heading up the effort.<p>They need some technology beyond what they know on the market, and (since it&#x27;s a nonprofit) they called up volunteers. I&#x27;m a volunteer, and I wrote the markdown doc in the gist.<p>The idea is to make longitudinal studies possible for persons that are tested for COVID-19.<p>How can I find help to make this happen for our town?
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joshuamcginnis
Check out the OpenCovid19 Initiative[0]. They have many ongoing sub-projects
and a dedicated slack channel for developers. You may find help for your
project or that something similar is already in the works.

[0] [https://itsfoss.com/opencovid19/](https://itsfoss.com/opencovid19/)

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william-at-rain
Thank you!

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x0xMaximus
We've been running a longitudinal self-reported diagnosis, conditions, and
risk exposure study. There are many challenges in this [0, 1], but plan to
keep collecting into the foreseeable future. Currently operating on a global
scale, but could be targeted to a specific geographic region.. - M
(max@generalresearch.com)

[0]
[https://www.bmj.com/content/351/bmj.h3480.full](https://www.bmj.com/content/351/bmj.h3480.full)
[1]
[https://bmjopen.bmj.com/content/1/2/e000234](https://bmjopen.bmj.com/content/1/2/e000234)

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william-at-rain
Thanks - I’ll reach out.

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bowheadhealth
Bowhead Health is working on a similar initiative for COVID-19 and we welcome
a potential collaboration fdmjr@bowheadhealth.com

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william-at-rain
Thanks - I’ll reach out.

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tekram
I am one of the founders at Luma Health. We may be able to help you out. We
could offer app less way of following patients and getting responses from
them.

Here is a short video on what is possible: [https://youtu.be/escWi-
ZuGRo](https://youtu.be/escWi-ZuGRo)

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william-at-rain
It looks like you send an automated text to a questionnaire. That’s a much
simpler way to start, and a text is a great “push notification”... :-)

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krrrh
Email is in my profile. We launched a citizen science app that already handles
thousands of participants in our first two studies. Lots of alignment with
where you’re going, and at the very least we can offer some advice.

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william-at-rain
Emailed. Thank you.

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axegon_
Nice initiative but you'll struggle to publish the app on the app store and
Google play(mildly put) with all their restrictions in relation to COVID19.

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william-at-rain
I wonder if there is a way to engineer our past that in the first month.

Maybe a web-based PWA while we wait for approval.

And not specifically calling it a COVID-19 app.

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axegon_
I am in fact with Google and Apple on this one - just don't. There's way too
much misinformation and speculation already. Not necessarily a result of
malintent, just the way sensations work these days as a result of the cattle
mentality demonstrated by the masses I'm afraid.

For many years I've been strongly opposing the so-called "wisdom of the
masses".

